I haven't gone anywhere but work and doctors' offices since January 19th (but I have done drive-thru for dinner on the way home from work) and am beginning to feel a little... not lonely, SO not lonely, but detached from the rest of the world. So detached am I, that I have stopped watching the news, and that concerns me. I've never been one-who-must-be-around-people-to-be-happy, and so feeling detached from the world isn't sad per se, (please, friends and family, if you ever read this, I do love you, but I am really enjoying my it's-okay-to-say-no-because-my-doctor-told-me-to time), but I recognize that the way I'm livings isn't the best way to be a citizen of the world.
However, I also recognize that I haven't gotten sick at all, not sniffle or a sore throat, since I started on the Gilenya. My neurologist told me to treat myself as if I were a new-born baby for the first six months on the Gilenya, or until I know how my body will respond to lower white blood cell count, and I have, and it worked! Everyone should be as isolated during cold and flu season! Imagine a world without any colds or the flu!
Even though I have been staying away from public places, I have felt well enough to go on a few walks around the neighborhood, just to get away from the apartment. It's been about a year and a half since I felt confident enough to walk any distance away from my home without fear of being struck immobile with fatigue (remember the M.S. fatigue wall?) and unable to get myself back. So, woo hoo Gilenya!
Impressions: We have had a pretty mild winter so far, no real snow, and I miss the snow. At this moment, I ache for it. I want to hear the squeak-crunch of boots breaking through the crust of a large snow drift. I want to walk in the muffled silence of falling snow. Walking around in the grey-brown Utah winter doesn't inspire me to spontaneously quote Robert Frost, and all winter walks should inspire Robert Frost moments. It makes me so happy that I am complaining about something so ridiculous as no-snow-winters-are-not-poetic issues rather than M.S.-is-hard issues!
However, I also recognize that I haven't gotten sick at all, not sniffle or a sore throat, since I started on the Gilenya. My neurologist told me to treat myself as if I were a new-born baby for the first six months on the Gilenya, or until I know how my body will respond to lower white blood cell count, and I have, and it worked! Everyone should be as isolated during cold and flu season! Imagine a world without any colds or the flu!
Even though I have been staying away from public places, I have felt well enough to go on a few walks around the neighborhood, just to get away from the apartment. It's been about a year and a half since I felt confident enough to walk any distance away from my home without fear of being struck immobile with fatigue (remember the M.S. fatigue wall?) and unable to get myself back. So, woo hoo Gilenya!
Impressions: We have had a pretty mild winter so far, no real snow, and I miss the snow. At this moment, I ache for it. I want to hear the squeak-crunch of boots breaking through the crust of a large snow drift. I want to walk in the muffled silence of falling snow. Walking around in the grey-brown Utah winter doesn't inspire me to spontaneously quote Robert Frost, and all winter walks should inspire Robert Frost moments. It makes me so happy that I am complaining about something so ridiculous as no-snow-winters-are-not-poetic issues rather than M.S.-is-hard issues!
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