Monday, January 23, 2012

Gilenya, Day Five

I was going to do this blog thing every day, but that isn't happening.  I wanted to track my daily symptoms, side effects, etc., so I would have a quantitative record of my experience to help me make the decision about staying on medications, but since I started on the Gilenya, I feel like I have slept my entire life away.


I slept for 20 hours yesterday. 20 HOURS! It wasn't continuous sleep, I did wake up to feed the cat, bathroom breaks, and water.  No meals though.  Fed the cat twice, but not myself! When I woke up this morning, I was so hungry and felt very shaky until I finished a yogurt cup. The problem is, I accidently took two pills yesterday. I was able to figure that out today by counting the pills, but I HAD counted them yesterday (seriously, this shouldn't be as hard as it felt) when I couldn't remember if I had taken my pill or not, but I obviously counted wrong.


Impressions: This sleep thing is out of control! Also, I feel like my brain can't talk to itself or I'm going crazy or something, because I can't remember anything. It's worse than being scatterbrained, which is a normal state for me, I can't remember passwords, or I've gone to go get a pen to write something down and I can't remember what I was going to write, many times a day. I forgot that I had already cooked my lunch, and made myself a second one. I'm afraid to drive anywhere.


Side Effects: Extreme fatigue, memory loss, confusion, headache, hot and cold flashes.





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