I have been working through these last few weekends on the Annual Report. I have everything formatted, I still need to collect the data for all the charts, and I need to collect a few more photos. I've been waiting for it to snow, so the properties would be more attractive, with snow all piled up on the bare branches, but it never snowed. So now I'm waiting for the trees to bud, and the grass to get green, so I will probably be running around on the last day trying to capture the perfect photo. I will also probably completely change format around before I'm done. That's kind of what I do. Inspiration only comes to me when the pressure is on.
Because I haven't been feeling well on the weekends, and because I have been working from home, I have let my apartment go again. I was doing so well, because I wasn't fighting the M.S. fatigue I could clean a little bit every day without being fearful that I would wear myself out before I could get any work done. I almost feel like the Rebif-me is hiding in the shadows, just waiting for me to let my guard down so she can slip back inside me and slow me down.
I had my required-to-continue-with-Gilenya three-month eye appointment this week. It was good news. Even though I am having some light sensitivity, and occasional blurry vision, I don't have any signs of macular edema. And, even better news, my eyesight actually improved a bit over the last year! The doctor said it was most likely because I haven't been wearing any corrective lenses, because I lost my glasses last summer, and so my eyes were forced to stop being lazy and worked harder to see.
This week I also started three blood pressure meds, through my primary care doctor. The first one didn't work after five days, so she started me on two additional. That combination seems to have worked, and my blood pressure was normal (118/79 )yesterday. Woo hoo! My primary care doctor was also able to prescribe a cream for an infection that I have on my face: Angular Chelitis. So hopefully that embarrassing thing will go away soon.
Impressions: I am anxious about my doing my best to make sure I can stay on Gilenya, The thought of going back to Rebif, scares and depresses me, even though I know that the Rebif worked, and slowed my suddenly fast progression. Doing everything I can, means drinking water, eating artichokes and asparagus, and keeping my spirits up.
Side effects: sleepiness and fatigue, the tickle-in-the-back-of-the-throat cough, spasicity, muscle twitching, sensitivity to light, vivid dreams, lowered immunity, infection, high liver levels (but they are getting better), high blood pressure.
